Confession: I am not a fan of activities that leave messes.  I wish I was the mom that always said “yes” to play-dough and finger painting and playing with sand.  But I am not that mom.  So when Justin asked me when we were going to make Christmas cookies with the kids, I did my best to try and get out of it.  I’m not kidding.  I suggested he do it with them while I was out running errands.  Or I’d take our little guy out for a bit and he could do cookies with the older two.  I even suggested that he and I could make cookies together one night after we put the kids to bed.

Guess what we ended up doing?

We made the cookies with the kids.  All three of them.  And as suspected, it got messy.  The table, the floor, the kitchen counters, the sink, 6 little hands and 3 little faces…all messy.

And I was OK with it.  Because they loved it!

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Mackenna and Caleb took their jobs as cookie decorators very seriously.  Lucas on the other hand, was only serious about sneaking cookies!

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This next image almost didn’t make the cut until I noticed the mess in the other room on the left side.  Having their things all over our house means that they still enjoy doing their things in our presence.  I don’t want the mess, but I also don’t want to take that for granted.

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He had absolutely zero interest in helping.  None.  He was only interested in consuming their masterpieces!  I love those little tippy toes!

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He knows who to ask.  That big sister of his will do just about anything for him.  She adores him, and he adores her right back…especially when she’s handing him a freshly frosted cookie!

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Favorite image coming right up:  Love her expression as he snatched that cookie from her hands!

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I’m so glad we ended up making Christmas cookies WITH the crazies this year!  My floors weren’t really all that clean to begin with anyway.  And it was so fun that I think we’ll turn Christmas cookie baking into a family tradition.  Because some December not too far down the road, my three littles will have grown into three teenagers.  And I might find myself alone in the kitchen, wishing one of them would join me for some holiday baking.  Perhaps if I invite them in to it now, so that they always remember being a part of it, they’ll continue to want to be a part of it even when they’re big.

So, yes to cookies.  Yes to the mess.  Yes to making memories with my favorite people!

Merry Christmas!

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A good friend of mine recently asked me to share part of my story in front of a large group of women.  I thought she was crazy…I’m more of a write-it-out-and-let-others-read-it kind of storyteller, not so much a stand-in-front-of-a-crowd-with-a-microphone kind of storyteller!  But she assured me that she was not crazy, and that the theme of the evening would be “The Weary World Rejoices.”  Well once I heard that, I understood why she thought to ask me.  Because my story fits that theme quite perfectly.

But doesn’t that theme fit all of our lives perfectly?  We are all weary.  Physically, emotionally, spiritually.  Work, finances, relationships, illness, brokenness, loss.  If not today, then at some point, right?  But the theme is, The Weary World REJOICES.  How can we rejoice when we are weary?  I’m hoping that what I shared that evening on that stage was able to help answer that question.

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On August 9th, 2013… just three months after diabetes joined our family, we welcomed our third child, Lucas Jack, into the world.  He was perfect.  Beautiful.  A breath of fresh air at just the right time.  After months of feeling overwhelmed and frustrated and angry, we needed something of pure joy and God delivered this sweet baby boy to soothe our aching hearts.  The blessing of new life and its perfect timing was not lost on me.  However, the days and weeks that followed his birth would be my most desperate times as a mother. 

Tonight I was asked to describe a time when I was weary.  This was it, hands down, the most overwhelming and exhausting time in my life.  First and foremost, I was physically drained…not ever getting enough sleep.  I was still setting an alarm to check Mackenna’s blood sugar once or twice each night, and now I was getting up to feed a newborn.  On the good nights, the blood sugar checks lined up with Lucas’s feeding schedule, but there were some nights when I saw every hour on my clock.  And let’s not forget about our other little guy.  Caleb was 2 ½ and not too thrilled about a new baby in the family.  His acting out added a new layer of complexity to my days as a stay at home mom.  Between checking blood sugars, counting carbs, nursing a newborn, and changing two sets of diapers, most days I didn’t eat or drink anything until the afternoon, all after hardly sleeping the night before.  Weary?  Yes, I was in a constant state of weariness.

And it wasn’t all physical.  Emotionally, I was dealing with some big questions.  Why did God choose to let Mackenna have diabetes?  Why would He do that to her?  I struggled with self-doubt.  Does God actually think I can handle all of this?  Three kids under the age of five, plus diabetes?  And I dealt with some jealousy…I was envious of basically anybody who got any semblance of a full night’s sleep.  Jealous of moms who seemed to have it all together.  Jealous of families who weren’t carrying around insulin, syringes, and emergency glucose.  I cried.  A lot.  Cried because I hated diabetes.  Cried because I didn’t think I could be a good enough mom for these three little ones.  Cried because it all just felt like too much.  I was completely overwhelmed by my life. 

It was really hard for me to be positive about anything during that time.  I especially had a hard time singing worship songs at church because for the first time in my life, my present reality seemed to conflict with the Truths I knew in my heart about God’s character.  Songs about God’s goodness and His healing power and His love for us…in my heart, I still believed it all, but my head was struggling to understand how that could be true alongside the fact that my child was living with an incurable disease.

I specifically remember one Sunday we were singing a song called The Great I Am and there’s a part when the phrase just repeats for a while, The Great I Am, Great I Am.  Tears ran down my cheeks and I could not get my mouth to form the words to sing it, but my heart seemed to be hearing a bit of a different song anyway.  My heart was hearing “I AM bigger than your circumstances.  I AM greater than your challenges.  I AM enough when you are running on empty. I AM enough when you have nothing left. I AM enough when you are overwhelmed. I AM bigger than diabetes. I AM bigger than your stress. I AM bigger than your doubts. I AM bigger than your shortcomings. I AM bigger. I AM enough.” 

And at that moment, I started to realize that this overwhelming life of mine, was not really about me.  It’s His story.  It’s not a story about my troubles, or my daughter’s diagnosis.  It’s a story about His faithfulness and His mercy.  A story about how He held me those nights in the hospital room when I couldn’t sleep…He was there, catching my tears.  It’s a story about how He prompted me to take her to the clinic and have her diagnosed before it was too late…A merciful story about a little girl’s life spared.  It’s not a story about an exhausted mother who doesn’t feel strong enough to navigate the waters around her.  It’s a story about a God who cares for me deeply, who knows my every need and has the power to meet each one.  A God who wants to take my burdens and give me rest.  He knows that I can’t navigate the storm alone and He has offered me His hand at every challenging wave.  

Being a part of God’s story calls for rejoicing.  Rejoicing in the truth that we are not alone, that He is always with us.  Rejoicing in the truth that when we are weak, He is strong.  And while we don’t know what happens in the next chapters, and we may not get much of a say in what trials come our way…The truth is that we know the story has a happy ending…because He said it will…and that’s why I rejoice.

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The “Thrill of Hope”, Jesus, is the reason why our weary souls can rejoice.  He is why a weary world can rejoice!  Because “yonder breaks a new and glorious morn” when we can meet Him face to face and He will wipe our weariness away forever!

Are you rejoicing this Christmas season?  I know you are weary.  He knows you are weary.  But our weariness is temporary.  Rejoice in the truth that He came to us once as a meek and helpless baby, and that He will return to us in His full glory and power and majesty!

  • Karli

    Beautifully written! Just what I needed this morning to get be going. I also have small children under 5, my oldest is a type 1. He was diagnosed last year. I really enjoy reading your blog, it’s nice to know others are out there going through what we do and we are not alone in this.
    Happy Holidays to you and your family.ReplyCancel

  • Jen

    Beautiful story. Thanks for sharing and encouraging!ReplyCancel

“…I am sure of this, that He who began a good work in you will bring it to completion at the day of Jesus Christ.”  (Philippians 1:6)

Dearest Mackenna (and all of her fellow type 1 fighters), 

I am sure of this.  I am sure that you would have chosen a different story line.  I am sure that your family would have written it much differently.  But I am sure of this: that He began a good work in you the moment you began.

“For You formed my inward parts; You knitted me together in my  mother’s womb.” (Psalm 139:13)

Mackenna, 3 months old

A good work.  GOOD work.  Your unique personality, your special talents, your recognizable features….and your type 1 diabetes.  Good.  All of it.  Because He is good.  And He doesn’t make mistakes.  You having type 1 diabetes isn’t a mistake; it’s not an accident.  It was no surprise to the One who created you.  He knew it would be a part of your story before we ever saw your sweet face.  And you having type 1 diabetes doesn’t mean He doesn’t love you to pieces.  Because He does.  He loves you more than I ever could.  His love for you is limitless, deep and wide, and beyond understanding.

“And I pray that you, being rooted and established in love, may have power, together with all the Lord’s holy people, to grasp how wide and long and high and deep is the love of Christ, and to know this love that surpasses knowledge.”  (Ephesians 3:17-18)

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His love surpasses knowledge.  It’s hard to know how He could love you so much and still choose for you to endure this disease.  But He does, and He did.  Only He knows the rest of your story and therefore, only He knows how to love you best.  I am sure that He knew your strength and courage before we did.  He knew you’d be able to handle this because He gave you that strength and courage.  And He knew that in the times when you feel like you can’t handle it, you’ll lean on Him to pull you through the rough patches.  Because that’s what He does.  He is faithful and mighty, and delights in the moments when you ask Him to carry you through rough waters.

“When you pass through the waters, I will be with you; and through the rivers, they shall not overwhelm you; when you walk through fire you shall not be burned and the flame shall not consume you.  For I am the Lord your God, the Holy One of Israel, your Savior.”  (Isaiah 43:2-3)

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And just as He has been faithful until now, I am sure that He will continue to do a good work in you until the day He returns.  Because He said that He will.  He has big plans for you, my dear.

“…I am sure of this, that He who began a good work in you will bring it to completion at the day of Jesus Christ.”  (Philippians 1:6)

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So while I will continue to educate anyone who will listen to me about type 1 diabetes…and while I will continue to advocate for you, and fund raise for a cure…  While I will set my alarm for the middle of the night and weigh all your fruits and vegetables…  I think the most important role I can play for you is that of an arrow.  An arrow that keeps pointing you back to the Truth.  When things are good, to point you to the One who blesses.  When things are tough, to point you to the One who overcomes.

Love you, Sugar Booger!

Today is Black Friday so I may be a little late to the game in writing my Christmas list because the best deals were probably scored by 5am this morning!  Oh how I wish the things on MY list were included in the mega sales today!  I’d be the first crazy one sleeping in a tent outside of the pharmacy if the discounts applied to prescriptions!  Anyway…here it is, my diabetes Christmas list:

  • Insulin…not a cure, but absolutely a life-saver for my girl!
  • Test strips…we go through 10-15+ of these every day.  At $1 each, it’d be nice to have a few extra boxes under the Christmas tree!
  • Insulin pump reservoirs and infusion sets…why doesn’t Medtronic have Black Friday sales?
  • A fun new pump pouch from Too Sweet Boutique!  We LOVE her handmade pump pouches and can never decide which beautiful design we like best!  (check out her website here!)
  • Tegaderm tape…helps us keep those infusion sets in place on our busy 7-year-old!
  • American Girl insulin pump and continuous glucose monitor…because if they have headgear for doll braces (do people still use headgear?), why not represent all the strong girls with type 1 diabetes by making t1d gear for their dolls?!
  • Blood Ketone Strips…we don’t use these a ton, but even after our insurance they cost about $10 each.  Each!
  • Buckets, baskets, truckloads of extra supplies so we could pay it forward!  There are people losing their fight against t1d simply because they don’t have access to the supplies they need.
  • A cure.  Is that too big for Santa?  Probably.  But we’ve been asking a Higher Power for a cure for two and a half years, and I know He can deliver in His perfect timing.

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Ok t1d family, what would you add to my list?

Also…I know I said today is Black Friday, but around here every Friday is a blue Friday.

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“Give thanks in all circumstances; for this is God’s will for you in Christ Jesus.”  (1 Thessalonians 5:18)

ALL circumstances.  Give thanks when things are good and when things are tough.  That’s part of what The Joy Before Me Challenge is all about.  Not forgetting about the blessings amidst the chaos and the difficult and the mundane.  Paying attention to the ways God loves on us in our every-day.  I thought it’d be appropriate, on Thanksgiving, to make my list specifically about diabetes.  Because there’s something to be thankful for in ALL circumstances.

  • Diabetes has brought out some beautiful qualities in our little girl.  She is brave.  She is compassionate.  She is strong.  She is confident.
  • We have an amazing support system in our friends and family.
  • We’ve made new friends in the community of families living with type 1 diabetes.  There is an instant bond between t1d parents…we get each other.
  • Our marriage has been through a lot, and I think we’ve come out better on the other side.
  • We recognize and appreciate the value of a good night’s rest more than we ever have!
  • I have a better understanding of what my brother has dealt with since he was in middle school…and have SO much admiration for how he has managed it.
  • Diabetes is annoying, frustrating, consuming…but it doesn’t, and won’t keep Mackenna from doing anything she wants to do in life.
  • We’re using a LOT of the math we learned in school!  Fractions, ratios, decimals, add, add, add.
  • God has been near, really really near.
  • This blog…a blessing to me, hopefully to you…would not be what it is, if it were not for the journey diabetes has taken us on.
  • I get to love on Mackenna in very unique and intentional ways as we navigate the tough waters together.
  • Our kids are learning very concretely, that God made everyone different.  They are learning about compassion and fairness.
  • Most of all, Mackenna is happy.  She has not lost the joyful, playful, silly spirit she had before diagnosis.  She is the same, only better.

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P.S.  If you’re wondering what The Joy Before Me Challenge is, head over to these blog posts here and here!